An letter to a friend who is having a second child evaluated for a diagnosis…
Come here and sit down.
You have a million things to do, I get that. But please. Have a seat.
I know you’re struggling. I do.
I know making that call for an evaluation was hard. Really really hard. You can dismiss it but I know that it took everything you had to do it.
The first time you made that call for your older child it might not have been as tough. Maybe your pediatrician suggested it or maybe the school did. You didn’t know what questions you were going to be asked or how much paperwork you would need to fill out. You didn’t know what the appointments were about or how many people would get involved. All you knew then was that people were telling you something was different about your child.
This time, though, this time you know. You know that it means hours of paperwork and interviews and testing for your little one. You know what they will ask and how they will ask it, looking at every little milestone under a microscope and questioning every detail of your child’s development.
You think you can’t do this again. You think you can’t hear the words again. You think you can’t handle the hours and the logistics and the emotions.
But you can.
I know because I was there too.
It was about 18 months between diagnoses in our house.
It took me so long to pull the trigger on making the appointments for Lewis. I would make the appointment and then cancel. I would stare at the paperwork. I spent so much time looking for “it” – the something that would be my sign that he was on the spectrum or not. He was so different from Howie. Early intervention would come out three times before he was eligible for speech therapy. And in the midst of it all we were working on Howie’s IEP and learning words like PECS and ABA and sensory diet.
The day after Lewis was diagnosed with PDD-NOS, I shared what I friend wrote to me:
“One on the spectrum is one. Two is two. I get that this is a watershed moment. But you know what to do now. You’re already doing it; it’s just a little more weight in your pack. You’ve got this. And you’ve got us.”
My friend, I say those words back to you. One kid with a diagnosis is one. Two is two.
You’ve got this.
I can say this now about 15 months after Lewis’ diagnosis.
The teacher meetings are the same. Just times two.
The home therapy that was a part of our life with one is now a part of our life with two.
And our kids are thriving thanks to early intervention, great teachers and an incredible village of friends.
Lewis met almost every goal on his IEP this year. And is meeting every goal in his home therapy.
My friend, I know you can do this. I know what a great parent you are.
Things are different now.
That knowledge that made it so hard to make that phone call in the beginning is now your power.
You know that the journey isn’t so scary.
You know what to do. You know what questions to ask. You know who to call and where to turn and who has your back.
You know this road.
And you know you aren’t on it alone.(I encourage you to read Welcome to the Club again if you haven’t already. It hits home with one child. But it means even more with two.) “Hold on, to me as we go
As we roll down this unfamiliar road
And although this wave is stringing us along
Just know you’re not alone
Cause I’m going to make this place your home Settle down, it’ll all be clear
Don’t pay no mind to the demons
They fill you with fear
The trouble it might drag you down
If you get lost, you can always be foundJust know you’re not alone
Cause I’m going to make this place your home” – Home by Phillip Phillips