Three stories. One theme.
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It’s the end of year show for Howie’s preschool. We make it through the show without incident. Outside the classroom is the giant food table, where each kid brought in a snack matching a letter of the alphabet. Our eyes travel over the table, looking for something that he can eat. His corn intolerance can make these events, well, intolerable.
One of the moms who volunteers in the class comes up to us. “I bought some Italian Ices at the store for Howie. I looked everywhere for something that he could eat. There’s no corn in it at all. I wanted to make sure he had something special here.”
I had held it together pretty well during the show, but my eyes welled up a little here.
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It’s Memorial Day, and we’re at our friend’s house for an afternoon BBQ. It’s about 90 degrees out, and we’ve been in and out of their pool and trampoline for hours. It’s three families spending the afternoon together – six adults and seven kids. No one bats an eye when Howie has a meltdown about the bugs and needs to sit. He’s tickled, fed and included every moment of the day. The kids all play together easily, moving from one activity to the next. When it’s time to go, Howie screams and begs for more time. My friends help me gather our stuff and we make a quick exit. Later, I e-mail them thanking them for treating Howie like Howie. I thank them for raising their kids to be tolerant and understanding, because we all know it’s not always like that. I tell them that other kids are already noticing that Howie is different, but their kids don’t see anything but a regular 5 year old boy.
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Yesterday afternoon, the phone rings. It’s my friend (from the story above) and she’s calling to give me a heads up about her son’s 5th birthday party. Her oldest and my oldest are best friends. Howie and her youngest are best buds too. They are having the party at Pump It Up, a large indoor bounce house playspace. She wants to know if there’s anything she can do to make the place more “sensory friendly” for Howie. “It gets really loud in there with the music. I can’t do anything about the sound of all the blowers, but I can ask them to turn down the music if you think it would be too much.” As she’s talking to me, Howie is in the midst of a giant meltdown at my feet. He’s screaming at me to get off the phone and just help him. My eyes well up again.
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Three stories. One theme. I write a lot about having a “village” – friends with kids with special needs who “get it“. They walk in my shoes every day and they understand the pain and frustration and heartache without explanation.
But the friends in each of three stories all have “typical” kids. They don’t walk in my shoes. They don’t have to understand.
But they do. The mom didn’t have to think of MY kid when she was shopping for treats for the school party. There are 17 other kids in that class, including her own, yet she was concerned about my kid having something to eat. My friends could have made snide remarks about my son at the BBQ, but instead they went out of their way to help us feel comfortable at their house. My friend didn’t have to think about MY son at all when planning her kid’s birthday party. But she was willing to make accommodations for him so that he could enjoy the celebration.
They aren’t put off by the labels that surround my kid. They just see my kid.
And for that, they are part of my village too.
“Oh, the more we get together,
Together, together,
Oh, the more we get together,
The happier we’ll be.
For your friends are my friends,
And my friends are your friends.
Oh, the more we get together,
The happier we’ll be! ” – The More We Get Together (children’s song)

June 3, 2011 at 10:41 am
That’s the “village” I think we are all really desperate for – not one of exclusion, but of inclusion. Where the ‘typicals’ and the ‘stimmies’ are One.
XO
So pleased to hear that you have that kind of support ‘outside’ of the wire ;0)
June 5, 2011 at 7:38 am
you’re totally right. That would be the model village. Wish I could create one for us all somewhere…
June 3, 2011 at 10:49 am
That’s really awesome you have friends like that. I hope to some day be so lucky. Having Katie has made me much more sensitive to others. This year, we had a totally vegan bday party for her b/c some of the girls we invited had various food allergies, and I didn’t want any of them to feel left out, or be surrounded by foods they couldn’t eat. I hope that by setting an example, others will realize how important it is to do…
June 5, 2011 at 7:40 am
I think it will. I try to go out of my way when we’re doing things here to make sure all the kids have something they’ll like, and I think it comes back to us. I’ve also been very upfront about the things we can and can’t do or eat. it helps.
and a vegan bday party! that’s hard! my husband is a vegan – I know how impossible that can be!
June 3, 2011 at 10:56 am
Yay! No less than you, and Howie, deserve. It makes all the differences to have the support and consideration from those who don’t have to. Keep growing villages, we have a whole world to cover.
June 5, 2011 at 7:40 am
one country at a time
June 3, 2011 at 11:19 am
Omg. This just did me in. Going in the shower to wail now.
I love you. Tons.
June 5, 2011 at 7:41 am
love you too
no crying in the shower.
June 3, 2011 at 12:47 pm
Wow. Yeah. You brought tears to my eyes and chills to the rest of me too. God, how I wish there were more people in the world like that.
June 5, 2011 at 7:41 am
I think they’re out there…I truly believe it.
June 3, 2011 at 2:42 pm
Hey, I just sang that song at the end of the preschool swim class I taught earlier today.
I hear you…yesterday I volunteered w/ my son’s EC special ed class on a trip to McDonald’s playland. It was so nice to talk with other parents whose kids ALSO had behavioral issues.
It is great to have folks who “get” it, even if they don’t “feel” it like we do.
June 5, 2011 at 7:42 am
I’ve had this song stuck in my head since I wrote this post…going on 2 days now…
June 3, 2011 at 3:09 pm
You have a great set of friends around you. The fact the mom was looking for things for your son is amazing and so kind. I would have been blubbering like an infant. I love it when others can see past things and see our child’s “true” self. Those are amazing people/friends indeed.
June 5, 2011 at 7:44 am
She is amazing and kind. I was blown away. And the best part now is that I have a frozen treat that my son can eat this summer that matches what his brothers can eat.
June 3, 2011 at 4:59 pm
You have wonderful friends who love you all because you are all so special and are wonderful friends to them!
June 3, 2011 at 9:15 pm
your friends also do that for you because they know that YOU would do that for their kids no matter what. Howie is amazing but you are too. Now I have that damn dust in my eyes again….
June 5, 2011 at 7:45 am
damn dust storms…
June 4, 2011 at 9:52 pm
I want to cry every time someone reaches out like that. They have no idea how much it means!
June 5, 2011 at 7:45 am
I know. I’m not sure they know. I must have thanked them a million times over (I’m sure they think I’m crazy now!)
June 5, 2011 at 9:30 am
It takes time to find them but these lovely, tolerant people ARE out there. I’m so glad that you’ve found a few of them! How wonderful fro Howie too. He may eventually learn from their kids as to behaviours and it is my firm belief that typical kids have a lot to learn from our ASD ones
xx jazzy
June 5, 2011 at 10:11 am
what a blessing to have friends like that. i am also grateful to the people who love my girl so well – just because.
June 7, 2011 at 7:42 am
You are so lucky to have supportive people around you!
I remember when my son “graduated” from pre-school. It was too much stimulation for him, so instead of sitting on the chair like the other little ones, he crawled under it with only his butt showing. If I’d have known he was going to do that, I would have painted a smiley face on his butt!!!!!
June 7, 2011 at 12:54 pm
Brought tears to my eyes. You have some terrific friends!
June 7, 2011 at 3:20 pm
This whole post just made my eyes well up with tears. Those moms and kids are so wonderful, and I love that they support you like that! I also love how they are teaching their kids to be tolerant and loving. Those kids are going to grow up into amazing adults!
June 8, 2011 at 7:37 am
I loved all three stories and they made me well up with tears