“I think I like being at school better than being at home.”
Those were the words out of my 8 year old Gerry’s mouth the other night. I was wrestling with his younger brothers, getting them ready for the shower, when he tossed that bomb out at me.
It wouldn’t have been such a big deal, except for the fact that he is usually complaining about how much he hates school and wishes he could just stay home. So this…this was a total twist.
But not a surprise.
I’ve waited a while to write about it, suffering some from writer’s block because the emotions and tears get in the way. However, this week I’ve been reading A Diary Of A Mom’s spotlight on siblings and her amazing stories of her two daughters have reminded me that I need to put my spotlight back on Gerry. The good, the bad and the ugly.
But I couldn’t get past the empty page – I couldn’t figure out how to put the right words down.
So I got some advice from an amazing new friend : “Start in the middle. Don’t look for a beginning. Don’t worry about structure. Start with what hurts. Then write.”
What I said back was this: “You’re right, of course. Except when it comes to watching my oldest struggle, it all hurts. It’s weird, I can write fairly easily about Howie. Watching him struggle with what he does is painful, but for some reason it doesn’t hit my core of motherhood like it does when I write about what a hard time my 8 yr old is having lately. Maybe because I have come to expect things to be hard for my 4 yr old. I just don’t know how to reach Gerry at all.”
I guess I’ll start with that.
In the past month or so, we’ve seen quite a change in Gerry’s behavior at home. I hate to even write that. First, he’s a good kid. An AMAZING kid. I’ve written so much about him before – he’s the kind of kid that parents want their kids to be friends with. I can trust him to know right from wrong. He’s an excellent student and continues to amaze his teachers with his ability to soak up information and his desire to learn more. He is wise beyond his years and can carry on conversations with his dad that I long to understand. He is an incredible big brother, tolerant and understanding and patient.
Usually. Lately, however, not so much.
He is becoming increasingly less tolerant of Howie and his behaviors. In the past, he’s been able to somewhat ignore the vocal stimming, the loud outbursts, the constant need for attention. Gerry could play his Lego Star Wars game on the Wii and tune out the noise and chaos around him. He can’t anymore. Everything Howie does annoys him. We’ve been eating in shifts for dinner because Gerry says the noise from Howie chewing with him mouth open is “so annoying I can’t hear myself think!!”
(The sensory avoider does not fall far from the sensory avoiding tree…)
We’ve done our best to control and help the situation. We’ve told Howie that his babbling and outbursts can happen in our toy room area, but not near the TV or at the dinner table. We’ve tried all sorts of bribes to get Howie to chew more quietly (I must say my husband’s recent “Jedi kids have to eat quietly in order to sneak up on the stormtroopers” worked well last night). But we’ve also tried to explain to Gerry that we have to understand that there are things that Howie can’t control, and while we’re working helping him, we all have to be patient and understanding about it.
In addition, he’s worrying about Howie constantly. He’s asked me many times about what kindergarten will look like for Howie – will he have an aide? Will he take the bus or the van? Who will help him? The statement behind the question here is, of course, will it have to be him helping his brother? Again, we’ve tried to explain to Gerry that it’s not his job to worry – that his dad and I will work it out with the school to make sure Howie is fine in kindergarten.
His response? “I am the school. This affects me.”
Of course, because he’s so wise beyond his years, we talk to him like he should understand. Like he’s an adult. But he’s not. He’s still eight years old.
As his coping mechanism, Gerry spends a lot of time alone. He does his homework alone up at Tim’s desk in our room. He rides his bike outside alone. He retreats to his safe spot – his room – to play with his Legos. He reads alone, showers alone, watches TV alone.
It breaks my heart. But it’s why his “I like school better than home” comment makes sense. Can you blame him?
I’ve spent countless hours these past weeks trying to figure out why things are so different recently. Was it the new school year? Third grade and a new teacher and new friends have brought new stresses and pressure for Gerry. And for the first time, he’s in a class with a few special needs students and their aides. Is it the fact that he uses up all his strength, tolerance and understanding in the classroom and has none left for his brother? Or is this just a “normal” sibling thing? Has he just reached his breaking point, like we all do? All of the above? None of the above?
Go ahead. I know what you’re thinking. Why didn’t I just ask him?
It’s because he and I never get any time just us.
We used to have it. Before his brother was born, we had almost 4 years when it was just us everyday. And even after Howie was born, we’d manage to have some time together – trips to the supermarket, time outside alone, reading books to each other. We even went to New York City for my cousin’s wedding before Lewis was born. We went to the top of the Empire State Building and watched it snow, wandered through FAO Schwartz in amazement, and saw the Statute of Liberty.
Where did that special time go? Hiding somewhere behind the chaos of our everyday lives. Pushed out by the meltdowns, the tantrums, the need to get dinner on the table before the house falls apart.
Gerry and I need to get that time back.
Starting this weekend.
Last night, after I got Howie to sleep, I climbed into bed with Gerry and told him my new plan. Breakfasts with Mom. Just he and I. At the local diner – one weekend morning a week. I told him we could talk, or not talk. Eat blueberry muffins and drink hot chocolate and figure out if the table jukebox works.
Spotlight back on Gerry.
That light needs to be on ALL my kids, so no one is left alone in the shadows of this family.
“Sometimes I feel like a motherless child
Sometimes I feel like a mother, a motherless child
Sometimes I feel like a motherless child
A long, long way from my home” – Motherless Child (spiritual)
October 14, 2010 at 2:53 pm
Wow. If Gerry doesn’t take you up on it, I’d LOVE to join you at that diner- sounds perfect. Our kids always need a little more, don’t they? I’m so pleased you’ve found a way to give Gerry what he needs.
October 14, 2010 at 3:04 pm
This post is so current for me also, thanks for writing it-
You are one very wise mother.
October 14, 2010 at 3:09 pm
Wow! Gerry is quite wise beyond his years. It’s amazing that he expresses hisself like that. He is the same age as my Blake, 3rd grade also and also does a lot of alone time himself. I am so worried I won’t be able to spend equal time with the both of them. What a good refresher for you and Gerry by having your diner mornings! Way to go! Enjoy!! I know it will mean so much to him to have special alone time with his mommy. xoxo
October 14, 2010 at 3:21 pm
oh my… this is breaking my heart and pulled right from the pages of our days, too.
so sorry that gerry is going thru this, but so happy that he has such an amazing mother in you!!!
our moments of clarity come in many different ways… though you feel like you “just don’t know how to reach gerry at all” – you are insightful and truly know him better than anyone, even what’s behind his questions. and you’ve sprung into action with a plan!
thank you for sharing your inspiring story… and giving us ‘food for thought’ for our own families!
October 14, 2010 at 7:50 pm
Hi! I’m following you now from the Special Needs Blog Hop. Looking forward to getting to know everybody.
I’m at http://yeahgoodtimes.blogspot.com or http://www.twitter.com/jillsmo
<3
Jill
October 14, 2010 at 11:03 pm
That was going to be my suggestion. Siblings need special one on one time just like the “special” child. Sometimes that’s all it takes to put things back into perspective. I hope that it works for Gerry. Please continue to share. We’re all here to support you through good and bad.
October 14, 2010 at 11:06 pm
wow- thanks for the honesty.
October 15, 2010 at 9:01 am
Sounds like you know what needs to be done. The really great mothers are the ones that know what needs to be done, and then they get it done. You are a great mother!
October 15, 2010 at 1:26 pm
What an honest, great post.
It is such a struggle, as a mother, to be your child’s everything. I think you are taking a great step in the right direction!
October 15, 2010 at 1:47 pm
OK – that one made me bawl. We’re going through exactly the same thing right now. A couple of years ago, I became aware of how much I missed with Coop during Sadies earlier years. He was about 10 at the time, and now at 13 we’re still struggling. It’s getting better every day, but I’ll never get those years back, and I’ve only got 5 or 6 left before he leaves the nest. Its nice to know Im not the only one struggling with this.
October 15, 2010 at 4:31 pm
Wow! I’m visiting as part of the special needs blog hop. What a great post. I think it’s great that you’re carving some time with your son. He sounds so smart and aware of things. I’m lucky in that I only have one child (who has Asperger’s). I don’t have to worry about how the siblings are doing. Unfortunately, though, my daughter doesn’t have siblings to play with! You can’t win!
October 16, 2010 at 10:09 am
My oldest is 15 and still doesn’t understand. I know deep down he loves his brother and will protect him at all costs. My youngest is so obsessed with games that he bugs his bigger brother all the time. Our situations are a little different but that’s exactly how my oldest son is. He gets so annoyed so easily. I try to get him to understand but it still seems so hard. Maybe the teenage attitude is what is getting in the way. I don’t know. It’s a good thing your making some alone time for Gerry. I bet he will enjoy it. Thanks for joining in the special needs blog hop. a
October 16, 2010 at 10:31 am
Jeez ya blink and the time disappears.My oldest is getting ready to turn 6 and my baby turns 3 1st of the new year. Sometimes, it is difficult for me to catch up with them… where they are at that particular moment. They are constantly changing. I relate so much to the difficulties of spreading myself from child to child and still have a relationship with the hubby – it is definitely a balancing act. I am grateful for the type of job he has…we try at least 2x’s a month to spend alone time with each child. I hope you will visit me @ http://mommetime.com/
October 16, 2010 at 1:12 pm
Thank you for sharing this issue that you are having. We are going through the same thing with our 8 yr. old daughter. We have four kids–8 year old twins, our little boy of this twin set is autistic, a three year old daughter who is also on the spectrum, and a ten month old baby boy. Between the two kids with autism and the baby, my typical daughter feels left out a lot of the time. It’s a difficult balancing act. I wish there was more out there for siblings of affected kids.
October 16, 2010 at 2:17 pm
Thank you everyone who wrote here and on the FB page and personally to me – it’s clear that parental guilt is universal and multiples with the more kids you have. I appreciate all the suggestions and stories. You’ve inspired me to find the moments whenever I can to spend one-on-one time with my kids.
October 17, 2010 at 9:57 pm
Thank you for this Post. I too have been following “Sibling week” on Diary of a mom….and his is something I struggle with daily. I have three kids…two “Typical” girls with my son, who happens to be autistic in between. It is such a challenge to find one on one time for the girls….and with my oldest just entering her teen years, and my youngest having just turned 8, the challenges seem even more daunting. It’s nice to know I am not alone.
October 18, 2010 at 12:20 am
oh! I somehow missed this post!
It’s heartbreaking reading that and identifying with the emotions personally.
Especially when you think you’re doing ok and then BAM , the child makes a comment like that *sigh*.
So glad that you are having some Gerry time, you’re a fantastic mom
October 19, 2010 at 7:16 pm
I am here with you. *sigh* good for you for recognizing Gerry’s needs and making things happen. You are a good mom.
October 19, 2010 at 10:53 pm
I am totally tearing up right now because your story struck a chord in me. Not only do I completely sympathize with what you are going through as a mother and as a friend … but I feel like my 6 year old is growing and changing so much right now and I guess I am going through a little of that disconnect too. And it hurts. I want us to always be close and to be able to understand any issues my son is having. But like you said, everyone deals with life differently and as Gerry enjoys his alone time, so will my Nino more and more I’m sure as he gets older. This was a very touching post. I hope your breakfasts are really great for both of you. xoxoxoxox
June 3, 2012 at 6:02 am
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