On my soapbox for one moment.
I read a lot of blogs. I mean A LOT. Probably too many (I think my husband would say scratch the “probably”). But I do it for a reason. In my constant struggle to become a better parent – maybe a more understanding parent – I search out others who are experiencing what I am and try to learn from their successes and lessons learned.
I read all these blogs because the mainstream parenting magazines just don’t fit my family anymore. I can’t tell you how many times I’ve picked one of them up with the teaser “Tips to help your picky eater!” and just put it down laughing. I need the “tips for helping your kid who will only eat crunchy orange food off of a green plate and has to drink his smoothie through a green straw!” Not surprisingly, that’s not the headline in next month’s Parents magazine.
However, it is the headline in many of the blogs I read. In addition to the amazing live and in person support group I have, these writers have become my guide through my everyday struggles. These mothers and fathers live what I live, and through our blogs and comments we share advice, ideas, and encourage each other to press on another day. Because it’s about our kids. We know that we aren’t medical experts, but we have been through enough to help others try not to reinvent the wheel.
But I’ve noticed lately a weird trend in some of the blog comments I’ve been reading. Things are starting to get nasty. Personal. People attacking the character and background of other bloggers. I’m not going to link to any of the personal attacks here because I don’t want to give them any more attention than they’ve already received. But it’s mean and unnecessary, and in many times there just to incite the other readers. Is that really what we’re all about?
Now I haven’t been writing for very long, so maybe this has been happening for a while and I’m just naive. I know that the autism community is divided on many issues – from causes to treatments to policy issues – and has been for a very long time. There’s nothing wrong with that. But to call someone a bad person or a bad parent because of what he or she believes or does for their child? Seems out of character for a community that wants their kids to be treated with respect and dignity in the outside world.
My father was the ultimate politician and I learned a lot from watching him. He would sit down with someone who was completely opposed to his position on a particular issue, listen to them carefully and thoughtfully, and then quietly explain his perspective and point of view. It was never about him or about pushing his agenda. He made it about the issue (usually about kids) and helped turn the discussion into a civil exchange of ideas. He would change the debate. More often than not, the person walked away with a new way of looking at the problem. And every time they walked away with a favorable impression of my dad.
Maybe it’s time to reshape our debate …again.
I’m joining with the amazing editors at the Autism Blogs Directory and am taking the next step to help create a new community. They challenged their readers to pick a blog they have never seen, read it, and leave a respectful and thoughtful comment. There are so many wonderful writers out there sharing their stories daily and I know I have a lot to learn from everyone.
So here’s my pick. It’s Laura from “Life in the House that Asperger Built“. I picked it because she’s a mom like me with children on the spectrum. But she’s also on the spectrum herself, as is her husband. I’m getting a unique perspective from her that I haven’t read anywhere yet, and I’m so grateful for that. I look forward to learning so much from her.
I’m hoping that others take up the same challenge. On the right side of my home page I have a long list of my favorite special needs blogs – choose any of them and you’ll find a fantastic writer behind that link. Have a child with sensory processing disorder? Click on ANY of my friends who are part of the SPD blogger network. A child on the spectrum? Click on ANY of my friends under “Websites I Like”.
I know that there are people who read this who don’t have kids with special needs (thank you friends and family who are here because I guilted you into signing up!) I hope you take me up on this challenge too. Are you a runner? Check out my friend Charlotte‘s blog. Interested in parenting and social justice issues? Read my friend Gaetane‘s blog. Or go to Google and type in your favorite hobby, click on blogs, and choose the first one that comes up.
Take a moment to read their latest post and leave a comment if you can. It’s the best way to rebuild our communities and support each other. It’s the best way we can tell each other we’re not alone. It’s the best way to start again.
I’m getting off my soapbox to look Spectrummy Mummy’s latest post. Her youngest was just evaluated by early intervention and I want to know how it went. I want to tell her that I’m there for her no matter what, because on Friday I’ll be in the same boat again. And I need her there with me then.
“I think you’ve made your point now.
You’ve even gone a bit too far to get the message home.
Before it gets too frightening,
We ought to call a vote,
So could we start again please?” – Could We Start Again, Please from Jesus Christ Superstar
September 15, 2010 at 6:59 am
You’re brilliant!
Great post and yes, we do all need to support each other,
Tearing each other down is futile and pointless.
Good on you for getting on your soapbox. I might climb up and join you
Fi
September 15, 2010 at 2:00 pm
it’s a big soapbox – please come join me
September 16, 2010 at 12:08 am
Oh….I forgot to add that I am thinking of you and crossing all my fingers and toes for you on Friday.
Sending lots of support
September 15, 2010 at 7:11 am
I’m here, and I’ll be here on Friday. We are a community as diverse as our beautiful children, but I like to think that when it comes down to it, we are here for each other when we need to be. We are not alone in this. I hope Friday goes well for you, but I’m here either way.
September 15, 2010 at 2:01 pm
I know you are, and that means so much to me. Your blog and many others have helped me on so many occasions. thank you.
September 15, 2010 at 7:38 am
Once again you are an inspiration, I really do adore your writing.
I will be thinking of you for Friday.
I hope you know how important and special you are – through your blog you are making ripples in a very big pond, and I am blessed to be able to read it and share in some of your journey.
September 15, 2010 at 2:02 pm
aw, Amy, you are making me blush and teary on a Wednesday! Thank you. I feel the same way about reading your blog – the title grabbed me in and I’ve been a fan ever since.
September 15, 2010 at 7:57 am
[...] This post was mentioned on Twitter by Spectrummy Mummy, akbutler. akbutler said: Time to take back the debate : Could We Start Again Please: http://t.co/iRCSvBe #autism #asd #specialneeds #sensory [...]
September 15, 2010 at 8:24 am
Wow! Thanks, so much!
I’m honored. Thank you so much. I’m having some RLF issues this morning, and you’ve really made me smile.
Thanks for being there for me. You’re a class act.
Laura
September 15, 2010 at 2:04 pm
no, thank YOU! I’m a new fan and I’ve enjoyed reading every post. Your perspective means so much to me and others.
September 15, 2010 at 8:58 am
THANK YOU, THANK YOU, THANK YOU!!! Thanks for getting on your soapbox this morning because I was just signing on to get on my own. What a few days its been. I, too, read lots of blogs. This is where I have found the most help in dealing with issues. I have read books after books and although they are good and have good ideas, it just isn’t the same as having live help. Good luck to you on Friday. I’ll be looking forward to your blog =) I’m going to take your challenge now.
September 15, 2010 at 2:05 pm
Thank you! I would love to know what new blog you read! Always looking for new ones, and I’m off to read yours now!
September 16, 2010 at 12:19 pm
My challenge blog that I read was Laura at Life in the House that Asperger Built. LOVE IT!! I just finished my blog from yesterday (and tagged you in it). Everytime I tried to type, I kept having distractions, so I never finished until today. Hope today has been good for you so far.
September 15, 2010 at 9:27 am
Bravo!!! This is a community I’m proud to be part of, always learning from everyone’s experience – even those with different opinions and methods. Thank you for putting this into perspective… and for taking action with your chalenge. Thinking of you for Friday – I’ll be here then and every day for you.
September 15, 2010 at 2:05 pm
thank you Dawn! You’ve become such a good friend so fast. I think we’re living the same life sometimes!
September 16, 2010 at 7:39 am
Hi Dawn, thanks for posting the link to the ‘ten commandments for parents of children with autism” page on my blog! I am so pleased you stopped by!
Amy
ww.ishouldhavecalledhimcalvin.wordpress.com
September 15, 2010 at 9:46 am
Thank you so much for your blog, and your commentment to the community. I am proud to say that I know you, Char, and Gaetone and your blogs are real and supportive. I love soapboxing (Word?), as long as they are respectful of others and their beliefs. You go girl:)
September 15, 2010 at 2:07 pm
thanks Robyn as always. You have the best outlook and I’m so happy to call you my friend
September 15, 2010 at 9:47 am
My goodness! Now I’m wondering what blogs you read because I haven’t been seeing any of that nastiness – I think I live a sheltered (blog) life.
Anyway, I chuckled with you at the “Picky Eater” article. I think my aha moment about this stuff came when I tried to read “How to Raise Your Spirited Child” thinking it would help. What a joke.
I have to check out some of the blogs you linked. Looking forward to it!
September 15, 2010 at 2:08 pm
just a lot of unnecessary name calling. So unimportant in the grand scheme of what we all do everyday.
Let me know if you found any ones you really like! Yours is one of my favorites – the first one I ever subscribed to!
September 15, 2010 at 10:18 am
Having a horrific week (Could I start again, please?)–this made me smile. I also haven’t actually read any of the nastiness you’ve referred to, but I TOTALLY AGREE with everything you’re saying…and thank you for being one of the people I turn to when I need a support group; I read often, but I don’t always comment. I will make an effort to do more in the future.
September 15, 2010 at 2:09 pm
I’m sorry you’re having a tough week – I have many days that I’d like to start over. I hope it gets better for you.
Sometimes it’s hard to find the time to comment, of course, but just knowing that you’re out there makes all the difference. Thank you.
September 15, 2010 at 11:20 am
I’m not an ‘old timer’ in blogland (just IRL) but after 3 years I have seen some of what you are saying. I have also had to learn that my comments are not always welcome. For me, leaving good comments has been a learned behavior.
I do several things to protect myself from those who will not change to your model behavior. I vote with my mouse. I click-off and don’t return to blogs that offend me. On my own blog I moderate comments – always have. I have seen bloggers quit when they could not shake-off a particularly nasty troll.
I get that you are not talking about trolls, but the unthinking commenter who gets nastily personal is a potential troll and might even have a diagnosis themselves. I guess that’s my primary strategy is to not engage with them.
September 15, 2010 at 2:10 pm
You’re totally right, which is why I didn’t link to any of the irritating comments. It’s the same reason I had to stop reading the comments section on newslinks. People can comment without recourse and anonymously, and it’s purely for their own pleasure. Not worth the time. thanks for being here Barbara!!
September 15, 2010 at 1:41 pm
What a great post! I will echo what Lisa said above… I get so much more from reading people’s personal experiences (aka blogs) than reading any article or book. It is just so much more meaningful.
In fact, I recently decided to start a blog myself. I hope that sharing my experience as a spectrum mom might help someone else out there the way that reading blogs like yours have helped me.
I clicked over to Spectrummy Mummy’s blog and left her a nice comment. Thanks for linking her up. My younger son has his EI evaluation next week. Finding others to relate to is so helpful to me.
Robin
September 15, 2010 at 2:11 pm
I can’t wait to check out your blog! Thanks for letting me know!
September 15, 2010 at 2:11 pm
and I have to say, this is what it’s all about.
September 15, 2010 at 2:54 pm
First, I laughed so hard at what you said about parents magazines. I feel the same EXACT way, which is why I finally told my sister to quit renewing my Parents subscription. It was so useless to me.
And I agree with you about being supportive and understanding. I don’t really know all the craziness that has been happening on other blogs. I guess I am out of the loop, thank goodness. I get enough snarkiness in real life; I’d rather not have it online as well. I am going to check out that autism blog directory.
Thank you for always being inspirational and genuine and kind!
September 16, 2010 at 10:38 pm
funny you say that about Parents mag – I’m letting my subscription run out. Every once in a while I read something interesting, but usually I’m just flipping through it.
The uncivilized discussions have cropped up again with the three vaccine stories out this week. I know people have strong opinions, but it doesn’t have to be personal.
I hope you found some good blogs! Yours is one of the best!
September 15, 2010 at 5:08 pm
I blog because I also want to see how others’ do this parenting thing… and keep their hair in their head.
I don’t always have time to comment on everything I like, but I do read a lot more blogs than I had planned!
September 16, 2010 at 10:40 pm
I love that! I blog to keep my head from exploding! (I’d say I do it to keep my hair from turning gray, but that’s long past possible)
I love reading your posts and I look forward to keeping up with your family.
September 15, 2010 at 6:48 pm
WOW – I read your post while I was in a restaurant and immediately became teary. You are an amazing writer and your reflections need to reach the mainstream parents, as well. Keep writing and get Parents magazine to listen.
September 16, 2010 at 10:40 pm
thanks Mom
September 15, 2010 at 10:10 pm
I too read “way too many blogs” but I find something special in each one of them. And, I will be heading out tonight at your recommendation to locate someone new.
September 16, 2010 at 10:41 pm
Let me know what you’ve found! I’d love to read them too! I agree – there’s always something to take away from another person’s perspective.
September 15, 2010 at 11:00 pm
Actually – yours was my new blog for the week … and I’m glad I’ve found you! I’ve been quietly blogging for a bit now myself – very quietly. But I do enjoy reading blogs, and I occasionally delve deeper into the community and find a few new ones – like yours – to follow. What I’ve seen of this community, as long as I’ve been following it, has been generally thoughtful and supportive. But you do get whiffs of intolerance wafting through – something that’s true, also, of real life. I look for the bright side, the kind hearts, the open minds. Thanks for being among them, and encouraging others to join you.
September 16, 2010 at 11:08 pm
don’t blog so quietly! Your blog is fantastic and you are a great storyteller. I think we all have interesting stories to tell – we just need to be respectful and open to everyone’s point of view.
September 15, 2010 at 11:04 pm
Thanks for visiting and for your sweet comment. I’m happy to see you encouraging others to be supportive with their words to others. We’re certainly not always going to agree, but we can always be respectful and kind. Looking forward to reading more of your writing!
September 16, 2010 at 11:09 pm
thank you! and same to you!!
September 16, 2010 at 12:08 am
This is an amazing post. And really, we should all be aware that we are real people behind these typed words. We have real children who do this stuff (who would make this stuff up?? Some of it is too unbelievable). Anyway – it’s easy to forget that you could potentially hurt someone’s feelings with an unthinking comment. I personally haven’t read any of it, and I’m glad! I really rely on having positive interactions with the ASD blogging community.
Thanks for bringing this up, and reminding us to be nice to one another!
September 16, 2010 at 11:11 pm
you hit it exactly – those of us who write have real families and are real people. Agree to disagree, of course. But the positive interactions are what make us special as a community.
You know I love reading your posts! Thanks for visiting!
September 16, 2010 at 1:16 am
I love this post! Thank you! : )
I would love for you to stop by our Sensational Celebration Event that we have posted. We have over $1,500 in giveaways for the SPD Foundations event and most items are sensory based
Have a great day! Can’t wait to read your next post
September 16, 2010 at 1:17 am
Oops, didn’t leave the blog!
http://lucasjourneyspd.blogspot.com/
September 16, 2010 at 8:01 am
[...] I popped open my Google reader (excellent way of keeping track of blogs, btw) and found a new blog post from Alysia who writes the Try Defying Gravity blog (you can see a link over in my inspiring [...]
September 16, 2010 at 11:44 am
Beautifuly written
September 16, 2010 at 11:11 pm
thank you! I can’t wait to check out your blog.
September 16, 2010 at 9:54 pm
Great post and spot on. I received an email this week from a lady offering me support over my latest blog. She said that she hadn’t wanted to post a comment because the last time she had done so somebody diagreed with her and went so far as to quote her in the attack. Sheesh – Sometimes motherhood kicks sisterhood smack in the back of the head.
I love your writing. You are truly inspiring, And…thank you for your support yesterday.
September 16, 2010 at 11:13 pm
I was thinking of you when I was writing this, since it was in the same spirit as your post a while ago about mothers supporting each other and not dragging each other down.
I’m happy that that lady sent you a personal note, but so sad that she felt like she couldn’t comment. That’s not what this should be about.
(I loved your post yesterday. You are an amazing writer and every mom should read your blog
September 17, 2010 at 10:04 am
I saw your post on Mamapedia, well done! Congrats on finding a friend like Hope & I’m sorry you’ve found trolls around here.
September 17, 2010 at 10:29 am
thank you for visiting!! I’m lucky enough to have not found any here – so far everyone has been incredibly supportive, renewing my faith in humanity daily! Can’t wait to check out your site. Thank you!!
September 23, 2010 at 10:39 pm
[...] wrote one line last week about my youngest having his second early intervention appointment. One line. And I got the most amazing, most overwhelming support from my friends – both in person and [...]